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A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease 1st Edition

4.7 4.7 out of 5 stars 138 ratings

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Dr Daniel Gibbs is one of 50 million people worldwide with an Alzheimer's disease diagnosis. Unlike most patients with Alzheimer's, however, Dr Gibbs worked as a neurologist for twenty-five years, caring for patients with the very disease now affecting him. Also unusual is that Dr Gibbs had begun to suspect he had Alzheimer's several years before any official diagnosis could be made. Forewarned by genetic testing showing he carried alleles that increased the risk of developing the disease, he noticed symptoms of mild cognitive impairment long before any tests would have alerted him. In this highly personal account, Dr Gibbs documents the effect his diagnosis has had on his life and explains his advocacy for improving early recognition of Alzheimer's. Weaving clinical knowledge from decades caring for dementia patients with his personal experience of the disease, this is an optimistic tale of one man's journey with early-stage Alzheimer's disease.

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Editorial Reviews

Review

‘As a neurologist with early-stage Alzheimer's, Dr Daniel Gibbs offers a uniquely insightful, candid, and compassionate view from both seats. A Tattoo on My Brain is essential reading for any family living with an Alzheimer's diagnosis.’ Lisa Genova, New York Times bestselling author of Still Alice and Remember: The Science of Memory and the Art of Forgetting

‘The patient perspective in Alzheimer’s is often sorely missing from international dialogue and debate about this demon disease. Dr Daniel Gibbs, whom I’m honored to call a friend in this journey, has connected the serpentine dots between the patient and the medical profession in his brilliant work, A Tattoo On My Brain. As a retired neurologist and now a patient, Dr Gibbs writes with great passion, knowledge and perseverance. His resolve reminds me of William Ernest Henley’s poem Invictus: “My head is bloody, but unbowed.” A Tattoo On My Brain is a must read for the world.’ Greg O’Brien, author of On Pluto: Inside the Mind of Alzheimer’s

‘When a neurologist experiences a so-called neurodegenerative condition such as Alzheimer’s or Parkinson disease they are often equipped uniquely to provide insight into a condition that non-medically qualified patients may lack. In this unique work, A Tattoo on my Brain Dr Gibbs tracks in meticulous detail the earliest symptoms of what was diagnosed subsequently as Alzheimer’s disease. This work will have major appeal to lay people, especially those caring for an affected family member but also to neurologists, neuropsychologists and those involved in trial of new medications.’ Christopher H. Hawkes, Honorary Professor of Neurology, Barts School of Medicine and Dentistry, Honorary Consultant Neurologist, Barts Health, Author of Smell and Taste Disorders

‘Dr. Gibbs provides a first-hand account of his journey as a neurologist living with early-stage Alzheimer’s that is thoughtful, educational, humorous and poignant. I highly recommend this book to patients and families living with Alzheimer’s, and to doctors and scientists dedicated to studying the disease and developing new therapies.’ Gil Rabinovici, Professor of Neurology, University of California San Francisco

'A Tattoo on My Brain describes Dr. Daniel Gibbs’ amazing journey from neurologist to patient living with Alzheimer’s disease. Clues crop up along the way, a genetic marker for Alzheimer’s, strange odors and memory glitches that tipped him off that his brain was starting to malfunction. He underwent advanced brain scans that showed the buildup of amyloid plaques and he joined a clinical trial to remove them. He vividly describes the side-effects that briefly turned his world upside down. But Dr. Gibbs emerges from this odyssey in good shape, with wisdom and reflection urging readers to learn about their risk for Alzheimer’s disease and take steps to prevent it.' Stephen Salloway, Director of Neurology and the Memory and Aging Program, Butler Hospital, Providence, Rhode Island, and Martin M. Zucker Professor of Psychiatry and Human Behavior and Professor of Neurology, Warren Alpert Medical School of Brown University

‘… profoundly moving … his memoir is a symbol of resistance that has muted the conversation about Alzheimer's among patient and doctors, family members and as a society.’ Alex Merrick, The Bookbag

‘Part memoir and part self-help guide, this book sees Gibbs reveal the importance of building your cognitive reserve with preventative measures early in life.' Natasha Harding, The Sun

‘A Tattoo on My Brain is Dan Gibbs’ personal account of living with a biomarker-defined diagnosis of Alzheimer’s disease. Notably, he’s a retired neurologist. The result is a story of two very distinct, even antagonistic, experiences. There’s the intense, personal subjectivity of being a patient and the sharp objectivity of being a physician who has diagnosed and cared for persons with the same disease. In one book is one narrative of two perspectives embodied in one person. The result is a candid, unadorned and vivid self-dissection that reveals what it’s like to lose one’s mind just a little bit at a time. I’m routinely prescribing this book to my patients.’ Jason Karlawish, author of The Problem with Alzheimer's

'… powerful, informative, and intensely personal story of a recently retired neurologist diagnosed with early-stage Alzheimer's disease … Readers are enabled to become Gibbs's companions on his path. Highly recommended.' L. R. Barley, Choice Connect

Book Description

An engaging account of a neurologist's experience with an Alzheimer's diagnosis, a disease he spent decades treating in others.

Product details

  • Publisher ‏ : ‎ Cambridge University Press; 1st edition (May 6, 2021)
  • Language ‏ : ‎ English
  • Hardcover ‏ : ‎ 254 pages
  • ISBN-10 ‏ : ‎ 1108838936
  • ISBN-13 ‏ : ‎ 978-1108838931
  • Item Weight ‏ : ‎ 2.31 pounds
  • Dimensions ‏ : ‎ 5.5 x 0.7 x 8.6 inches
  • Customer Reviews:
    4.7 4.7 out of 5 stars 138 ratings

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Customer reviews

4.7 out of 5 stars
138 global ratings

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Customers say

Customers find the book informative and useful about Alzheimer's disease. They find it hopeful and well-written in first-person. The writing style is poignant and easy to read.

AI-generated from the text of customer reviews

8 customers mention "Information quality"8 positive0 negative

Customers find the book informative and useful. They appreciate the author's expertise as a neurologist and detailed accounts of his battles with Alzheimer's disease. The book provides a new, informed view of the disease that affects everyone. Readers mention it's the best book they have read on Alzheimer's.

"...with mild cognitive impairment or Alzheimer's will find the book very informative and written with heart...." Read more

"...Detailed accounts of his battles with Alzheimers provides insight into a disease many of us will face at some time...." Read more

"...As a physician I found his expertice as a Neurologist very informative. Others might find it too much in the weeds?..." Read more

"...This book provides useful information about a disease that affects everyone in one way or another and is very easy to read...." Read more

4 customers mention "Book hope"4 positive0 negative

Customers find the book hopeful and great. They say it gives them hope to hear from a neurologist that they can live well with their condition.

"...It also gives hope in situations that may have been without it before." Read more

"...It gives a lot of hope to hear from a neurologist that you can live well with dementia and you can live longer than stereotypical forecast of only 2-..." Read more

"Looks like a good book..." Read more

"Great book..." Read more

4 customers mention "Writing style"4 positive0 negative

Customers find the writing style poignant and well-written. They say it's informative, written in first-person with a ghost writer, and easy to read.

"...or Alzheimer's will find the book very informative and written with heart...." Read more

"First it is written in the first person (with ghost writter) Second it is very timely...." Read more

"...a disease that affects everyone in one way or another and is very easy to read. It also gives hope in situations that may have been without it before." Read more

"A Well Written Book..." Read more

Top reviews from the United States

  • Reviewed in the United States on August 30, 2021
    Anyone who has or knows someone with mild cognitive impairment or Alzheimer's will find the book very informative and written with heart. I enjoyed it so much, I couldn't put it down and read it over the course of two sittings in one week-end. I felt like I was right there next to the author in some instances. I hope he writes a follow-up.
    2 people found this helpful
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  • Reviewed in the United States on June 29, 2021
    Revealing work by a person who understands first hand what is happening to him. Detailed accounts of his battles with Alzheimers provides insight into a disease many of us will face at some time. The most important take away message is that time is not on your side but early recognition and intervention are on your side. It is possible to stall the effects of Alzheimers and learn how to live with it, if only for awhile. Dr. Gibbs describes medical terms, procedures and drugs in an easy to understand format. This book will open your eyes to how we should be dealing with this terrible disease.
    4 people found this helpful
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  • Reviewed in the United States on June 26, 2021
    First it is written in the first person (with ghost writter)

    Second it is very timely. Dr Gibbs was first to have a reaction from Aducanumab that put him in ICU.

    He recovered from ARIA with high dose IV steroids. Amazing that he improved his mentation to the point where he thinks he is better than before the Aducanumab.

    As a physician I found his expertice as a Neurologist very informative. Others might find it too much in the weeds?

    I am only giving him 4.5 stars because he does not discuss keto diet or going on statins to get cholesterol down as low as possible to avoid stroke and heart attack. These are 2 events that can cause an Alzheimers to "fall off a cliff".

    The rest of his advice is fairly standard.

    But it is his personal writing that gave me so much solace and so much for me to hope for myself as I am in my fourth year of having Alzheimers.
    21 people found this helpful
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  • Reviewed in the United States on August 9, 2021
    This Book Provides a New Informed View of Alzheimer's Disease. This book provides useful information about a disease that affects everyone in one way or another and is very easy to read. It also gives hope in situations that may have been without it before.
    2 people found this helpful
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  • Reviewed in the United States on August 22, 2022
    As someone with early stage young onset Alzheimer’s I enjoyed this book very much. It gives a lot of hope to hear from a neurologist that you can live well with dementia and you can live longer than stereotypical forecast of only 2-8 years. I’m 4 years in and maintaining well just as Dr. Gibbs and I hope to go as far.
    8 people found this helpful
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  • Reviewed in the United States on April 5, 2022
    I learned a great deal about the function of a healthy brain and the changes made to the brain by Alzheimers. Dr. Gibbs writes in a way that a layperson can understand. He stresses the need for much earlier diagnosis and lifestyle changes that can slow the progression of this disease, years before cognitive decline is evident. This book gives me hope that one day we will beat this disease.
    One person found this helpful
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  • Reviewed in the United States on June 15, 2021
    I found this book very informative. It's not too technical. I learned a lot about alzheimers and my risk.
    One person found this helpful
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  • Reviewed in the United States on November 8, 2021
    Dr. Gibbs was my neurologist in Portland for many years. He was an astute professional and guided me. I ran across this book and was saddened to hear that he has Alzheimer’s. I just received the book today and I am looking forward to reading from the patient and the doctors point of view. Good luck Dr. Gibbs you are the best. ❤️❤️
    10 people found this helpful
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Top reviews from other countries

  • D.Armstrong
    5.0 out of 5 stars A good and inspiring read!
    Reviewed in the United Kingdom on June 11, 2021
    I found this book very interesting and helpful too. The author knows what he is talking about as a specialist and patient. It inspired me to take steps now rather than wait for possible dementia to develop. I would recommend this book to all who are interested in the subject.
  • CS Warren
    5.0 out of 5 stars A perfect balance of clinical information and personal experience.
    Reviewed in the United Kingdom on May 11, 2021
    A perfect balance of clinical information and an expert’s personal experiences. A very important and interesting book.